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The Adult With Cerebral Palsy
Clyde E. Rapp, Jr, MD;
Margarita M. Torres, MD
Arch Fam Med. 2000;9:466-472.
Important aspects of eliciting a proper history, obtaining a review of systems, and performing a physical examination in adults with cerebral palsy are presented. Information regarding diagnosis, etiology, and epidemiology of cerebral palsy as well as suggestions for performing examinations and procedures on uncooperative and extremely dysmorphic patients are included. A MEDLINE search of all English-language publications related to cerebral palsy from 1985 to 1999 was conducted. Other older references also were obtained from articles published during this period. Our personal experiences in caring for a group of approximately 300 adults with cerebral palsy and other developmental disabilities in specialized centers for nearly a decade are used frequently throughout this review. Emphasis is given to studies of adults. Studies of children are included because there is a lack of data on adults. These studies are identified as such in the text, with extrapolation to adults only where there is a sound clinical or scientific basis. The number of adults with cerebral palsy is increasing. This growth is due to increased survival of low-birth-weight infants and increased longevity of the adult population. Depending on clinical status and the age at which survival is calculated, 65% to 90% of children survive until adulthood. Despite these observations, there is a lack of information in the literature and a lack of relevant postgraduate training programs for physicians in the adult health care system.
From the Center for Adults with Developmental Disabilities, Department of Pediatrics, Albert Einstein Medical Center (Dr Rapp), and Eastern Regional Center for Adults with Spina Bifida, Moss Rehab (Dr Torres), Albert Einstein Healthcare Network, Philadelphia, Pa.
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