10.2190/EK7C-0H24-CPMR-R8B1 EK7C0H24CPMRR8B1 133 SELF-HELP GROUPS FOR WOMEN WITH PAIN-- A RESEARCH REVIEW WITH A GENDER PERSPECTIVE 133 148 20061002 20061002 20061002 20061002 EK7C0H24CPMRR8B1.pdf http://baywood.metapress.com/link.asp?target=contribution&id=EK7C0H24CPMRR8B1 1 BIRGITTA FORSBERG LENNART NYGREN SIV FAHLGREN (Ph.D. Student in Social Work, Department of Social Work), Mid Sweden University, Östersund (Professor of Social Work, Department of Social Work), Umeå University, Sweden It is the aim of this review to provide a survey of research on Self-Help Groups (SHGs) in health care with a special focus on SHGs for women with chronic muscular pain. The aim is not only to describe this field of research, but also to consider how this research relates to gender research as such. A variety of themes are examined: history, external factors that influence SHGs, internal aspects of SHGs, and gender research on SHGs. It was found that the gender perspective was relatively neglected. Our suggestion for further research notes that group members can produce new ways to manage their lives with the help of the interaction/exchange in the SHGs, regarding gender construction, knowledge, legitimacy and adaptation or transformation, and the position of activities in SHGs among societal norms and attitudes. Adamsen, L. (2002). "From victim to agent": The clinical and social significance of self-help group participation for people with life-threatening diseases. Scandinavian Journal of Caring Science, 16, 224-231. Adamsen, L., & Rasmussen, J. M. (2001). Sociological perspectives on self-help groups: Reflections in conceptualization and social processes. Journal of Advanced Nursing, 35(6), 909-917. Bakker, B., & Karel, M. (1983). Support for self-help. In Self-help and health in Europe. Köpenhamn: WHO. Banks, E. (1997). The social capital of self-help mutual aid groups. Social Policy, 28(1), 30-38. Baxter, S. (1993). The last self-help article you'll ever need. Psychology Today, 26(2), 70-74. Ben-Ari, A. T. (2002). Dimensions and predictions of professional involvement in self-help groups: A view from within. Health & Social Work, 27(2), 95-103. Borkman, T. (1990). Self-help groups at the turning point: Emerging egalitarian alliances with the formal health care system? American Journal of Community Psychology, 18(2), 321-332. Borkman, T. (1997). A selective look at self-help groups in the United States. Health & Social Care in the Community, 5(6), 357-364. Borkman, T. (1999). Understanding self-help/mutual aid--Experiential learnings in the commons. London: Rutgers University Press. Carlsen, B. (2003). Professional support of self-help groups: A support group project for chronic fatigue syndrome patients. British Journal of Guidance & Counselling, 31(3), 289-303. Chamberlin, J., & Rogers, E. S. (1996). Self-help program: A description of their characteristics and their members. Psychiatric Rehabilitation Journal, 19(3), 33-41. Charlton, G. S., & Barrow, C. J. (2002). Coping and self-help group membership in Parkinson's disease: An exploratory qualitative study. Health & Social Care in the Community, 10(6), 472-478. Damen, S., Mortelmans, D., & Van Hove, E. (2000). Self-help groups in Belgium: Their place in the care network. Sociology of Health & Illness, 22(3), 331-348. Fahlgren, S. (1999). Det sociala livets drama och dess manus: Diskursanalys, kön och sociala avvikelser [The drama of social life and its manuscript: Discourse analysis, gender and social differences]. Umeä: Umeä Universitet (dissertation). Foucault, M. (1990). The history of sexuality: An introduction (Vol. I). New York: Random House. Glaser, K. (1976). Women's self-help groups as an alternative to therapy. Psychotherapy: Theory, Research and Practise, 13(1), 77-81. Haberman, U. (1990). Self-help groups: A minefield for professionals. Groupwork, 3(3), 221-235. Harding, S. G. (1998). Is Science multicultural?: Postcolonialisms, feminisms, and epistemologies. Bloomington, IN: Indiana University Press. Hasenfeld, Y., & Gidron, B. (1993). Self-help groups and human service organizations: An interorganizational perspective. Social Service Review, 67(2), 217-236. Hatch, S., & Kickbusch, I. (1983). Making a place for self-help. In Self-help and health in Europe. Köpenhamn: WHO. Högsbro, K. (1992). Sociale problemer & selvorganisert selvhjaelp in Danmark [Social problems & self-organized self-help in Denmark]. Fredriksberg: Samfundslitteratur. Horne, S. (1999). From coping to creating change: The evolution of women's groups. Journal of Specialists in Group Work, 24(3), 231-245. Horton Smith, D., & Pillemer, K. (1983). Self-help groups as social movement organizations: Social structure and social change. Research in Social Movements, Conflicts and Change, 5, 203-233. Humphreys, K. (1997). Individual and social benefits of mutual aid self-help groups. Social Policy, 27(3), 12-19. Karlsson, M. (2002). Själv men inte ensam--Om självhjälpsgrupper i Sverige [Self but not alone--About self-help groups in Sweden]. Stockholm: Institutionen för socialt arbete, Socialhögskolan, Stockholms Universitet (dissertation). Katz, A. H., & Bendet, E. I. (1976). Self-help groups in a Western society--History and prospects. Journal of Applied Behavioral Science, 12, 265-282. Kickbush, I., & Hatch, S. (1983). A re-orientation of health care? In Self-help and health in Europe. Köpenhamn: WHO. Krause, M. (2003). The transformation of social representations of chronic disease in a self-help group. Journal of Health Psychology, 8(5), 599-615. Ljung, M. (1995). Lyft jorden mot himlen--Växande i kvinnogrupper och kvinnliga nätverk [Raise the earth towards the heaven--Growing in women's groups and women's networks]. Lund: Carlsson Bokförlag. Mäkelä, K. (1992). AA som självhjälpsrörelse och 12-stegsv3rd [AA as a self-help movement and 12-step treatment]. Nordisk Alkoholtidskrift, 9(4), 185-197. Mäkelä, K., Arminen, I., Bloomfield, K., Eisenbach-Stangl, I., Helmersson Bergmark, K., Kurube, N., Mariolini, N., Ólafsdóttir, H., Peterson, J. H., Phillips, M., Rehm, J., Room, R., Rosenqvist, P., Rosovsky, H., Stenius, K., Swiarkiewicz, G., Woronowicz, B., & Zielinski. (1996). Alcoholics Anonymous as a mutual-help movement. A study in eight societies. London: The University of Wisconsin Press. Malterud, K. (1994). Klinisk kunskap om kvinners "ubestamte" plager--Ulika perspektiveer for innsyn og utsyn [Clinical knowledge about the diffuse pain of women--Different perspectives for insight and views]. In informasjonssystem--En vei til ny kunnskap om kvinners helse? Oslo: Senter for Kvinneforskning, Universitetet i Oslo. McCrady, B. S., & Irvine, S. (1989). Self-help groups. In R. K. Hester & W. R Miller (Eds.), Handbook of alcoholism treatment approaches: Effective alternatives (p. 292). New York: Pergamon. Medvene, L. J., Wituk, S. A., & Luke, D. A. (1999). Characteristics of self-help group leaders: The significance of professional and founder statutes. International Journal of Self Help & Self Care, 1(1), 91-105. Mehlbye, J., & Nygaard Christoffersen, M. (1992). Selvhjaelpsgrupper--Omfang, karakter og erfaringer [Self-help groups--Extent, nature and experiences]. Köpenhamn: AKF förlaget. Moeller, M. L. (1983). Self-help and the medical practitioner. In Self-help and health in Europe. Köpenhamn: WHO. Mok, B. H. (2001). Cancer self-help groups in China: A study of individual change, perceived benefit and community impact. Small Group Research, 32(2), 115-132. Rapping, E. (1986). The culture of recovery: Making sense of the self-help movement in women's lives. Boston, MA: Beacon Press. Rapping, E. (1997). There's self-help and there's self-help: Women and the recovery movement. Social Policy, 27(3), 56-61. Richardson, A. (1983). The diversity of self-help groups. In Self-help and health in Europe. Köpenhamn, WHO. Riessman, F. (1965). The "helper" therapy principle. Social Work, 10(2), 27-32. Riessman, F. (1997). Ten self-help principles. Social Policy, 27(3), 6-11. Riessman, F., & Banks, E. (1996). The mismeasure of civil society. Social Policy, 26(3), 2-5. Säljö, R., & Sätterlund-Larsson, U. (1996). Kommunikation i v3rden--Kön, interaktion och makt i patient-läkarkonsultationer [Communication within Care--Gender, interaction and power in consultations between patient-doctors]. In Jämställd v3rd: Möten i v3rden ur ett tvärvetenskapligt perspektiv (Vol. 1996:134). Stockhohm Statens Offentliga Utredningar. Schubert, M. A., & Borkman, T. J. (1991). An organizational typology for self-help groups. American Journal of CommunityPsychology, 5(19), 769-788. Simpson, R. G. (1996). Relationships between self-help health organizations and professional health care providers. Health & Social Care in the Community, 4(6), 359-370. Stewart, M. J. (1990). Professional interference with mutual-aid self-help groups: A review. Social Science Medicine, 10(31), 1143-1158. Taylor, V. (1999). Gender and social movements: Gender processes in women's self-help movements. Gender & Society, 13(1), 8-33. Vijayanthi, K. N. (2002). Women's empowerment through Self-Help Groups: A participatory approach. Indian Journal of Gender Studies, 9(2), 263-274. Vogel, H. S., Knight, E., Laudet, A. B., & Magura, S. (1998). Double trouble in recovery: Self-help for people with dual diagnoses. Psychiatric Rehabilitation Journal 29(4), 356-364. Widerberg, K. (1995). Kunskapens kön [The gender of knowledge]. Stockhohm: Norstedts. Wituk, S., Shepherd, M. D., Slavich, S., Warren, M. L., & Meissen, G. (2000). A topography of self-help groups: An empirical analysis. Social Work, 2(45), 157-165. Wituk, S. A., Shepherd, M. D., Warren, M., & Meissen, G. (2002). Factors contributing to the survival of self-help groups. American Journal of Community Psychology, 30(3), 349-366. Yip, K. S. (1998). The sharing of roles between a social worker and members of a self-help group for mental ex-patients in Australia. Asia Pacific Journal of Social Work, 8(2), 30-50.